First Thanksgiving and Aidan being sick!

Well it has been a pretty stressful last month for Aidan and his Mommy and Daddy. As you can tell we updated the blog only once in November. After Halloween he was admitted to the hospital with aspiration pneumonia. After a few days he came home to rest and recover. Unfortunately the antibiotics have not worked and he continues to need frequent suctioning from this trach to remove the excessive secretions. Mommy and Daddy have gotten very little sleep and are very tired. Our new nurse has worked out very nicely since she has started. We like her and Aidan seems to like her as well. Aidan enjoyed his first Thanksgiving at his Grandpa and Grandma Marino’s house along with Uncle Tony. Although he did not get to eat any turkey he did fall asleep at the table. We recently went to the pulmonologist (lung doctor) who recommended a very aggressive lung hygiene program for us to follow to help him with his aspiration pneumonia. Hopefully it will work; otherwise we will need to do some more invasive procedures. Aidan continues to progress at his own pace. The teachers from the Early On service have been very impressed with his progress. He is starting to sit up on his own and we recently got him fitted for an abdominal binder which will help support him as he learns to sit up. We have a meeting with several doctors towards the end of this month to discuss plans for a possible kidney transplant. We hope to have some good news to report back soon. Grandpa and Grandma Marino stopped by for a visit this past weekend. He enjoys seeing them when they stop by. He is looking forward to seeing his Grandma Lee come down for a visit after Christmas. Speaking of which Aidan is looking forward to his very first Christmas. We hope to get him feeling better so that we can take him to see Santa Claus for some pictures. It looks like Aidan will be a very spoiled little boy this year. He really enjoys the Christmas lights on the tree and wakes up every morning and goes to bed every night listening to Christmas music. We will post some pictures and video of Christmas morning later this month. His mom and dad are really looking forward to Christmas morning with the little guy. We have added several new pictures to the site and some new video. Enjoy and have a Merry Christmas and a Happy New Year!



First Thanksgiving


I feel like the kid from the movie "A Christmas Story!"



See I do smile once in a while.