10-5-09- Week of Sept. 28 through Oct. 4

We are going for 3 weeks in a row of nothing exciting happening. Erik and I are really starting to like this. Monday night mommy had suite tickets to the Tigers game but it got rained out and rescheduled for Tuesday. Unfortunately, Nurse Stacie was not feeling well on Monday so we had no nurse until Thursday. So that meant mommy could not go to the rescheduled Tigers game on Tuesday. Tuesday was a busy day for mommy, daddy and Aidan. We had dialysis in the morning from 7:30 am until 10:30 am. Then it was off to the physical therapist for some PT. Aidan did really well in PT. He was bearing some weight on his knees and trying to crawl up some stairs to get to a toy. It was really exciting to see him advance. I know that he is behind for his age, but he has really been active lately. Then after PT it was off to the ENT doctor. It looks like the next big surgery after the transplant will be something called Mandibular Distraction. Here is a website for you to look at about this surgery (http://www.pedsent.com/surgery/swfs/distraction/distraction.htm). We talked to the doctor a little bit about this surgery during our visit. We are thinking sometime next year for the Mandibular Distraction surgery. We also setup Aidan for surgery on November 16th. He is going to have some granulation tissue removed from his trachea, they are going to inserct a new trach one size bigger and then he will be receiving another bronchoscopy. Early-On came for another visit on Wednesday. They were very impressed at how much progress Aidan has made. Thursday was another trip to hemodialysis in the morning followed by kidney clinic and pulmonary clinic. Everything checked out ok for Aidan. On a lighter note, Aidan wore his University of Michigan gear to hemodialysis on Saturday for good luck but it didn't work as the Wolverines lost 26-20 to the Michigan State Saprtans. On Sunday Aidan wore his new Tigers shirt that Mommy got him on Monday at the stadium. That seemed to work as the Tigers won 5-3. He then switched to his Lions shirt but again that didn't work as the Lions were beaten badly by the Bears (Grandpa Troxtel's new team) 48-24. Well that's about it for this week. Thank you all for the support and prayers. We miss and love you all.